Provides financial assistance to young adults as they regain momentum in their lives after cancer. Program provides scholarships to students surviving breast cancer, or have a parent or guardian surviving breast cancer. Scholarship award of $2500 for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. The RAREis Scholarship Fund is designed to elevate the dialogue within the rare disease community and create opportunities to listen, share, and educate each other about the rare disease experience, said Tim Walbert, chairman, president, and CEO of Horizon Therapeutics, which is sponsoring the program. Physical Disability, Spina Bifida, Chronic, Serious or Life Threatening Illnesses, Spinal Cord Injuries, Urostomy, Transverse Myelitis, Ileostomy, Neurogenic Bladder, Colostomy. Share this article: The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Suite 700 The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . that will help to offset the cost of virtually attending NORD's Rare Diseases & Orphan Products Breakthrough Summit. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. $2,500 Educational scholarship for immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Program offers scholarships to full-time graduate students with moderate-severe to profound pre-lingual hearing loss. Autism, ADHD, Brain Injury, Deafness, Learning Disability, Spina Bifida, Bi-Polar Disorder, Cerebral Palsy. Details Written: Monday, January 4, 2010 Available to students in every state in the continental U.S., the ChairScholars National Scholarship Program provides eligible high school seniors and college freshmen up to $20,000 for tuition to attend the college or university of their choice. Program provides scholarships to students diagnosed with down syndrome seeking higher education or post-secondary classes. Sort by: Name **Filter Feature In Development** "Higher education is so important, and we are thankful to BioMarin for offering this scholarship to further help people living with a rare disease." BioMarin announced its RARE Scholars program on . Program awards multiple scholarships to undergraduate and graduate students with disabilities who are interested in pursuing a career in the communications, media, or entertainment industry. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. Program provides up to 3 scholarships towards college education to siblings of childhood cancer survivors. Educational program provides a college scholarship to teens diagnosed with cancer for future academic success. Program offers scholarships to graduating seniors who have/had alopecia. Program offers scholarships to individuals who have been affected by mesothelioma. Program offers scholarship for students with a spinal cord injury who attend or planning to attend University of Utah for undergraduate or graduate studies. Program awards a scholarship to high school seniors who use a cochlear Nucleus device pursuing higher education. Scholarships awarded to two adults with cystic fibrosis who are pursuing a career certifications, associates, and bachelor and graduate degrees. An educational scholarship for a surviving spouse or child of a deceased service member from a service-related death or a veteran with a 100% service-connected disability. Program provides financial assistance to individuals with hemophilia for GED certification. Program offers scholarships to incoming college freshman with Type 1 diabetes pursuing a higher education at an accredited four year school. Always check with the individual program if you have questions. Program offers scholarships to survivors of intimate partner abuse, pursuing an education. An educational scholarship for students who are survivors of cancer or have an immediate family member that is a cancer survivor, or has passed away due to cancer. $2,500 fund to a student with a summer internship in a nonprofit organization that supports direct legal services and/or projects on issues of concern to individuals with HIV or AIDS, anywhere in the country. Program provides a scholarship to players who have an immediate family member diagnosed with cancer. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . Program awards a scholarship to a student diagnosed with down syndrome seeking higher education or post-secondary classes. NORD Leads the Way: 900+ Influential Rare Disease Stakeholders from FDA, Patient Organizations, and Industry Gather for #NORDSummit 2023 . Children with parents or sibling affected by chronic disease are also eligible. Program awards scholarship to select undergraduate students who have experienced the devastating loss of a parent or caregiver to suicide. In conclusion, this map helps build a foundation for bridging genome biology and medicine and enabling new biomedical discoveries by connecting existing resources and tools across the spectrum of rare and common disease. Awards a scholarship to students who are manual or power wheelchair users for pursuing higher education. RARE Mental Health Impact Grant. The Scott and Kim Verplank Foundation provides renewable annual college scholarships for students with disabilities pertaining to Type 1 Diabetes up to $10,000 for tuition, fees, and books.Students must renew their application every year. Scholarships awarded to current or former cancer patients of the Valerie Fund for post-secondary education expenses. Bleeding/Clotting Disorders, Hemophilia, Von Willebrand Disease. Program awards scholarships for students affected by epilepsy and other seizure disorders pursuing higher education. Program provides scholarships of up to $1000 to young men and women who are cancer survivors. The number of scholarships given varies. Provides a summer camp scholarships to children affected by epilepsy and in financial need. Deafness, Hearing Loss, Hearing or Ear Conditions. Provides academic scholarships to assist students diagnosed with Cystic Fibrosis pursuing undergraduate or graduate degrees. 7/13/2020 10:57:33 AM . Program awards scholarships for students with or impacted by a loved one with mesothelioma pursuing higher education at a four-year college or university. Veterans - Disability/Injured-Families, Military related. In addition to a current transcript of grades and diagnosis verification form, applicants must submit an essay explaining their goals and how the scholarship would help achieve them. NeedyMeds, a registered 501(c)(3) national nonprofit (#46-3091990), makes every effort to ensure the accuracy of the information on the website. Foundation offers memorial scholarships for students who are burn survivors, have been treated for burn/soft tissue injuries, or suffer from frost-bite, pursuing higher education. Program awards a scholarship to a full-time undergraduate student with limb loss or limb difference. Website: bionews.com Awardees will be notified in October. Educational scholarship awarded to burn survivors who are former campers of Hoosier Burn Camp pursuing higher education. All scholarship recipients will be selected by an EveryLife Foundation-appointed, independent board of reviewers. Bleeding/Clotting Disorders, Von Willebrand Disease, Hemophilia . Program awards scholarships to high school seniors with disabilities pursuing higher education. Scholarships to LGBTQ students currently enrolled in Science, Technology, Engineering, or Mathematics (STEM) or STEM-related teaching fields. Program awards one-time and recurring scholarships to students who are affected by cancer and are in pursuit of a post secondary education. Blindness in family member, Military wounded, Children with a parent wounded, disabled or killed in military service, A scholarships is awarded to a spouse, dependent child or grandchild of a blinded veteran or an Active Duty member of the. Two $2,500 scholarships each year awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Program offers scholarship to survivors of childhood cancer who are seeking higher education. Collapse All Expand All AAAI Scholarship AAHD Frederick J. Krause Scholarship on Health and Disability AbbVie Cystic Fibrosis Scholarship Annual Traumatic Brain Injury Scholarship Baer Reintegration Scholarship The #RAREis program, which was started by Horizon as a social media campaign to elevate the rare disease community, aims to raise awareness of those living rare disorders. $1,000 Scholarship for those who were seriously injured in a car accident to help them achieve their goal of going to college by easing the financial burden of secondary education. Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. Program provides scholarships for college students with a major limb amputation, who will be attending an accredited university as a full time student. Program awards scholarships for students with disabilities pursuing further education in computer Science or related field. The mission of NORD is to improve the health and well-being of people with rare diseases by driving advances in care, research and policy. A scholarship awarded to any current or soon-to-be undergrad who have had their life altered due to a bodily injury from an automotive or pedestrian accident. To support people living with rare disease while navigating obstacles to education, we have partnered with the EveryLife Foundation for Rare Diseases to establish the #RAREis Scholarship Fund. Scholarship award for any current or soon-to-be under grad who has had their life altered due to a bodily injury, be it their own injury, that of a loved one, or an influential individual. Scholarships at selected colleges, universities, and community colleges for students with spinal cord injury. Program will offer 10 scholarships to outstanding students living with GI disease, pursuing their higher education goals. Bronchiectasis News Today - EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US - August 20th, 2020. Program awards scholarships helps people with CF and their immediate family members pursuing higher education. Patients were recruited through the Clinical Analysis and Reporting System (CDARS) using relevant keywords and/or International Classification of Diseases (ICD) codes listed in Additional file 1: Table S1.CDARS is a tool developed by the HK Hospital Authority . This scholarship program is through Sanofi. Pensacola, FL 32502 Living with a rare disease means facing daily challenges, including frequent doctors visits and rigorous treatment regimens. Provides a scholarship created to provide youth on home parenteral and/or enteral nutrition (HPEN) the chance to experience summer camp. Program awards scholarships to those whose lives have been altered due to injury while serving in the United States Armed Forces. An educational scholarship for children of a disabled military parent. Program awards multiple scholarships to Ally members who are legally blind or visually impaired completing undergraduate or graduate degrees. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. Program awards a scholarship to a blind or visually impaired female undergraduate student studying music. Mental Disability, Behavioral Disorders, Eating Disorders. Program provides educational scholarships to students diagnosed with Hemophilia A or B. August 20, 2020. A scholarship for a college/university student with a disability to receive assistive technology software or hardware up to $500. Phone: 1-800-936-1363. Program offers a scholarship to any current or soon-to-be undergraduate who has had their life changed due to an injury from a car or truck accident. Living with a rare disease means facing daily challenges, including frequent doctors visits and rigorous treatment regimens. The period of data obtained was from 1st January 1985 to 31st October 2020. $5,000 scholarship to high-achieving students who are disabled and enrolled in a accredited college or high school. Provides a one-time scholarship for cancer patients/survivors attending college. Program offers need-based scholarships and educational experiences to high achieving cancer survivors pursuing a music related field of study.